If you would like to sign up for the benchmarking survey, go to the participation survey by CLICKING HERE
If you are not yet registered to be part of this Social Media Diabetes Stakeholder and Partner Forum, please register by clicking on “Register” in the upper right hand corner of this page. You will not have full access to all membership tabs and pages until you Register.
Welcome to the Online Diabetes Stakeholder and Partner Forum. We have designed this web portal as an online social media learning collaborative to share information with and to gather information, opinions and feedback from patients and stakeholders interested in diabetes and its treatments.
We hope that this web portal will serve as a point of contact and experience sharing for the growing online diabetes community including patients, care givers, clinicians and family members. This portal also serves as the patient and stakeholder engagement forum for diabetes-related research projects.
Our initial premier research project is entitled “Benchmarking the Comparative Effectiveness of Diabetes Treatments Using Patient-Reported Outcomes and Socio-Demographic Factors”, funded by PCORI (Patient Centered Outcomes Research Institute – http://www.pcori.org/). In brief, this study involves assembling pooled diabetes clinical trials, quality-of-life databases and one of the largest and most comprehensive healthcare electronic medical records databases in existence in an attempt to predict individualized patient-centered characteristics that differentially impact diabetes treatment effectiveness. The study compares, treatment effectiveness in lowering HbA1c, improving health-realted quality of life and treatment satisfaction, and also attempts to determine to what extent factors such as age, gender, employment status, education, income, race, language, ethnicity, clinical characteristics, and other patient characteristics impact treatment outcomes. The results from this research will be incorporated into web-based applications that will allow clinicians to predict how likely a patient will be to respond given their individual characteristics and planned treatments. These tools can also be used to benchmark treatment effectiveness against the clinical trial “gold standard” practice protocol as well as the more typical clinical practice setting. See the corresponding research abstract by clicking here.
We hope that you will find our website informative, and we are certain that your contributions to our forums and surveys will enrich our knowledge of the concerns and needs of persons with diabetes.
Please feel free to contact us if you have questions or comments about this site.